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https://hdl.handle.net/2440/124498
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dc.contributor.author | Khan, N.N. | - |
dc.contributor.author | Vincent, A. | - |
dc.contributor.author | Boyle, J.A. | - |
dc.contributor.author | Burggraf, M. | - |
dc.contributor.author | Pillay, M. | - |
dc.contributor.author | Teede, H. | - |
dc.contributor.author | Gibson-Helm, M. | - |
dc.date.issued | 2018 | - |
dc.identifier.citation | Fertility and Sterility, 2018; 110(3):514-522 | - |
dc.identifier.issn | 0015-0282 | - |
dc.identifier.issn | 1556-5653 | - |
dc.identifier.uri | http://hdl.handle.net/2440/124498 | - |
dc.description.abstract | OBJECTIVE:To develop a question prompt list (QPL) for women with polycystic ovary syndrome (PCOS) and explore its acceptability and feasibility. DESIGN:Nationwide online survey, interviews, and clinical pilot test. SETTING:Australia. PATIENT(S):Two-hundred and forty-nine women online, 18 women in interviews, and 20 women in clinics. INTERVENTION(S):A QPL for PCOS. MAIN OUTCOME MEASURE(S):From survey, women's likeliness to use a QPL and priority topics; from interview, QPL user-friendliness and associated feelings; from pilot, women's QPL use, perceived helpfulness, and intended future use. RESULT(S):Evidence-based guidelines and multidisciplinary experts informed the QPL development. Of 249 survey respondents, 66.7% to 68.7% reported difficulty communicating with health care providers about mood, weight management, and how PCOS affects daily life, and 85.8% indicated they were very likely to use a PCOS QPL. Women were interviewed to explore acceptability; the semistructured interviews (n = 18) revealed that the devised QPL was easy to understand, user-friendly, and encouraged information seeking and targeted question asking. The refined QPL was pilot-tested in a clinic setting to explore feasibility between 2016 and 2017: 60.0% of women asked 1 to 2 questions from the QPL, 20.0% asked several questions, and 10.0% reported the QPL helped them generate their own questions. Women agreed the QPL was helpful (95.0%) and that they would use the QPL again (90.0%). CONCLUSION(S):The PCOS QPL is acceptable and feasible, and may assist women in information seeking and targeted question asking. | - |
dc.description.statementofresponsibility | Nadia N. Khan, Amanda Vincent, Jacqueline A. Boyle, Millicent Burggraf, Monisha Pillay, Helena Teede, Melanie Gibson-Helm | - |
dc.language.iso | en | - |
dc.publisher | Elsevier | - |
dc.rights | © 2018 by American Society for Reproductive Medicine | - |
dc.source.uri | http://dx.doi.org/10.1016/j.fertnstert.2018.04.028 | - |
dc.subject | Polycystic Ovary Syndrome | - |
dc.title | Development of a question prompt list for women with polycystic ovary syndrome | - |
dc.type | Journal article | - |
dc.identifier.doi | 10.1016/j.fertnstert.2018.04.028 | - |
pubs.publication-status | Published | - |
dc.identifier.orcid | Teede, H. [0000-0001-7609-577X] | - |
Appears in Collections: | Aurora harvest 4 Medicine publications |
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