Please use this identifier to cite or link to this item: https://hdl.handle.net/2440/135009
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Type: Journal article
Title: Guideline registries and libraries: a mixed-methods approach identified issues to be addressed with content
Author: Twaddle, S.
Harrow, E.
Service, D.
Alonso-Coello, P.
Kopp, I.
Munn, Z.
Citation: Journal of Clinical Epidemiology, 2022; 144:121-126
Publisher: Elsevier
Issue Date: 2022
ISSN: 0895-4356
1878-5921
Statement of
Responsibility: 
S. Twaddle, E. Harrow, D. Service, P. Alonso-Coello, I. Kopp, Z. Munn
Abstract: Objective: To establish what GIN guideline community members see as the desirable features of a guidelines library and registry of guidelines in development Study design and setting: An explorative mixed-methods study was undertaken, including scoping activity and semi-structured interviews with guideline developers and endorsers from nine member organizations of the Guidelines International Network. Results: A small number of desirable features of a guideline library were identified: comprehensiveness; single source of information to avoid searching multiple sites; inclusion of related materials; being up to date; searchability and ease of use. No existing library of guidelines was considered to have all of these features. A number of issues arose out of the desire to have a comprehensive library of guidelines, including inclusion of ‘high quality guidelines’ and limiting the scope to include only national guidelines. For registries of guidelines in development, the data set should be limited to avoid placing undue burden on those entering information. Conclusion: Our findings identify ongoing issues for the guideline community, including the tension between comprehensiveness and ease of use, which can result in limited uptake, reporting of guideline quality and the need for clarity on the purpose of any library or registry.
Keywords: Guidelines
Qualitative research
Guidelines International Network
Registry
Databases
Rights: © 2021 Elsevier Inc. All rights reserved.
DOI: 10.1016/j.jclinepi.2021.12.002
Grant ID: http://purl.org/au-research/grants/nhmrc/1195676
Published version: http://dx.doi.org/10.1016/j.jclinepi.2021.12.002
Appears in Collections:Public Health publications

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